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Re: [LUG] Only two weeks to stop your medical records being available

 

On Wed, Jun 09, 2021 at 11:30:05AM +0100, maceion@xxxxxxxxx wrote:
> My personal opinion.
> I want my GP to share my data throughout the UK, and it being used for
> research of other purposes. My body when I die is already donated to
> allow students to practice their cutting up skills.
> (Surgery is a manual skill as well as a knowledge skill)

If you want your brain to be shared then then is a separate level of
authorisation that needs to be provided.
> 
> As a constant traveller, and having been admitted to hospital in London
> after arrival from Iran unconscious from an air flight (I went
> unconscious during flight Iran-UK due to injuries from a car crash in a
> taxi on way to airport) I am well aware of how ability to access my
> records by the receiving hospital was important, as well as them and the
> airline contacting my wife.

Optout1 states

"I do not allow the patient above’s identifiable patient data to be
shared outside of the GP practice for purposes except their own care."
> 
> Currently I am in three long term medical studies, run by King's College
> & NHS, so I know importance of data and analysis which may helps others.
 
Any links on how to join medical studies, seems worthwhile in
specific. General I am more skeptical.


-- 
Henry
Communication not signed with an original manual signature or an appropriately 
verified digital signature is not binding.
Wed  9 Jun 11:46:45 BST 2021

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